Couple: Competent care difficult to find



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Shannon Rogina was diagnosed with tubar sclerosis when she was a baby, which caused multiple tumors to form on her brain leaving her unable to speak or walk. Her parents, Mike and Brenda Rogina, with the help of a home health care company, have to tend to her every need. Scott Roberson / Daily Journal


The mother still shudders when she thinks of what could have happened.

For 30 years, Brenda Rogina’s top concern has been her daughter Shannon, who was diagnosed with tuberous sclerosis after she began having seizures as a baby. The disorder caused multiple tumors to form all over Shannon’s brain, which eventually took away her ability to walk and speak.

Now her parents, along with any help they can get, take care of her every need, feeding her, dressing her, moving her position every hour and knowing what all her sounds mean — from a happy laugh to a frustrated grumble.

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